We just met with the neurosurgeon because they are done with their part but plastic surgery is closing and working on her lipoma. So she is still in surgery but will b done within an hour or two. Said fin was the most tethered and stretched spinal cord he had ever worked on and it was a miracle she had been ok in the past. Praise The Lord!!! Can you believe the most stretched and tethered cord a seasoned neurosurgeon has ever seen was on a little girl who has NEVER had one symptom before Saturday- a miracle for sure!!! He completely detethered her and only 1 nerve "rootlett" ending that goes to her anus was damaged and he does not think that will affect her. He said everything looks good but she can possibly tether again in the future. Ultimately he was pleased with the result. Plastic surgery is in there now and will be probably an hour. We will know how the plastic surgery repair went in a few. They started surgery (after taking her back- she was sedated-) 2 hours late and we found out It took so long for them to begin because they were having trouble with getting an arterial line. Also they realize her sacral bone was misshaped and he had to get an X-ray of it before they begun and then had to cut the bone to reshape it. Crazy!!!! I should hear more soon. They want her off activities and school for 6 weeks minimum. She will not be on her back for the next 2 days rather will be on her side or stomach. Bring on ideas of what she can do!!! I'll update soon. Thanks so much for your prayers. We have felt them all!!!!
TGIF/Spring Break Report
2 days ago