Ok we saw the neurosurgeon this mOrning and he is greatly concerned and is scheduling her for surgery tomorrow morning. The surgery will last 6+ hours and they will be going in and detethering her cord. The dr said she looks horribly tethered on the MRI so he might not be able to detether the whole cord if function loss prevents but he will try. He said he is pleased she has not lost continence besides the few accidents as if she had lost more then she would probably never get it back. Regarding the limp and lower leg feeling, he thinks she will get that function back from surgery but if not physical therapy will work with her to get it back. They are trying to get her an early morning surgery but we won't know till they hear from OR. When we know the time I will let you all know. The recovery is not easy. She will have to lay 100% flat in bed for 3 full days (60 hours) without ever raising her head. In praying they sedate her otherwise its not going to be easy. Any suggestions on what to do for 3 days laying flat not able to get out of bed would be appreciated. Fins gonna go crazy- us too!!!
We are attempting to figure out what we are going to do with all our kids for surgery day and for the days after. Please pray for that.
I will update everyone when we know what time surgery will be. Please pray for fin and her nerves. She's super excited since Kev got here but she still gets teary here and there.
Thanks for your prayer.
Christy:)
Wednesday, January 16, 2013
5:52pm update
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Will be praying in FL!
ReplyDeleteSending many prayers from NC!!! I wish we were close and we would help with the kiddos!!! Praying for peace and comfort for you all!!!!
ReplyDeletePraying in PA
ReplyDeleteBless her! Praying from KY. When my son had a surgery at age 2 and had to lay flat for a couple days following surgery, there were a couple of videos he watched over and over! The little TV screen would adjust to right in front of his face. Hopefully they will sedate her and that will help.
ReplyDeletePraying in Wisconsin!
ReplyDeleteSending hugs and prayers from Nebraska. Hope your sweet girl has a super speedy recovery!
ReplyDeleteI so wish I lived near by because I would be there in a heart beat. Can grandma come or maybe someone from your church. Don't be embarresed to ask friends everyone wants to help they just need to be ask. Often people don't ask because they assume you have it covered and not because they don't want to help. Sending my prayers that way and praying they sedate her. Three days is too long to ask a little one to lay on back not lifting head and moving. I would express your concerns to the nurse and see if you can get an answer, so that your heart can rest and you can get some sleep tonight. Hugs from Atlanta.
ReplyDeleteLifting you, Finley and the rest of the family up in prayer. Praying that the Great Physician will guide the doctors hands during surgery, and heal Finley's little body. May He also surround you and fill you with peace and stregnth as you face the recovery.
ReplyDeletepraying for you and Fin. Janie had to lay perfectly flat but could lay on her side as well for 24 hours.I dreaded it so bad and honestly she never tried to get up because she hurt so much. She lay on her side and watched movie after movie on the ipad and was sooooooo much better than I thought she would be. Praying you have the same experience with Fin. It sounds like Fin's will be more invasive than Janie's so recovery time will be longer. Janie did great. I think we were on house arrest for 3 weeks??? I've blocked it out:) Praying for you all!!!!!
ReplyDeleteBest wishes, both for the surgery and the recovery time.
ReplyDeletePraying for you and your precious daughter
ReplyDelete